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Tuesday, May 3, 2016

Ty's battle gives Lundbergs hope

Thursday, February 7, 2013

Jacki, Ty and Joslyn Lundberg at one of Ty's trips to Children's Mercy Hospital, Kansas City, Mo.
(Submitted photo)
Nineteen-month-old Ty Lundberg has been through 29 rounds of chemotherapy and then surgery to remove a cancerous tumor.

Through it all, his mother, Jacki Lundberg, says that "He's always been strong, he does whatever we take him to do."

Ty has central nervous system cancer, called neuroblastoma, a disease in which malignant cells form in nerve tissue of the adrenal gland, neck, chest, or spinal cord, according to the website cancer.gov.

Neuroblastoma most often begins during early childhood, usually in children younger than 5 years. It sometimes forms before birth but is usually found later, when the tumor begins to grow and cause symptoms. In rare cases, neuroblastoma may be found before birth by fetal ultrasound, according to the website.

"He had swollen kidneys on an ultrasound at 36 weeks," Jacki Lundberg, who is also a nurse, said, "They followed up at three weeks; that's when they found the cancer." The cancer has not metastasized, she said.

"Every three months we go to Children's Mercy for lab work," she said. "Every six months, he has an MRI, an isotope scan, and a bone scan. He is sedated for all three. They take a little over an hour each.

"He went through 29 rounds of chemo before we were told he was a candidate for surgery. The surgery was to remove portions of the tumor. It was a tumor that wraps itself around an organ. They have to go in to take it piece by piece. They couldn't reach the last five percent of the tumor because of the way it was wrapping itself with organs."

They are hopeful.

"It's down, less than one percent of cancer," she said. "If it's less than one percent until July, then he'll be considered in remission."

Ty will be 2 on June 15.

Because of their son's experience, the Lundbergs, Josh, a 1997 graduate and Jacki, a 2001 graduate of Fort Scott High School, are passionate about cancer research. So much so, that they are having garage sales to support two different cancer research groups. The garage sales will be on February 23 at Buck Run Community Center from 8 a.m. to 2:30 p.m. and March 23, 8 a.m. until they close.

"We have a four-year-old, his big sister, Joslyn," Jacki Lunbderg said. "She's a big advocate. She's already going through her toy box to give toys to make money for kids who are sick."

50 percent of the proceeds will go to Bourbon County Relay for Life, the other 50 percent to Children's Cancer Research. Team Super Ty, the Relay for Life team, is local.

"So half stays local," Lundberg says. "It's one team, we are supporting two different cancer research groups. Curesearch.org does children's cancer research. We'll be walking on April 6 in Kansas City. This particular walk will be for Kansas City and the surrounding area, primarily Children's Mercy, Kansas City. The other half will go to the Bourbon County Relay For Life. It will be June 14. It's one main team, we are supporting two cancer research groups."

Through this real life drama, the family has met several other families battling the disease.

"It makes it that much more important to support cancer research...to get more cures," Jacki said. "Thirty-six children are diagnosed daily with some form of children's cancer. One out of five diagnosed will not survive. Three out of five survivors will have effects later in life: heart problems, hearing loss, secondary cancers later in life."

They get their strength to go on from "our huge family support system, and lots of friends. The local Sharing Bucket has been so helpful. They paid some of the prescriptions, helped with gas.

"The biggest support is the emotional support. Especially when you need to vent about something."

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Keep fighting kid Ft. Scott is pulling for you.

-- Posted by SLap SHOt on Thu, Feb 7, 2013, at 1:09 PM

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